NATIONAL
LICHEN SCLEROSUS SUPPORT GROUP The
first group in the world to be established for lichen sclerosus
A
UK based voluntary group with an international membership and reputation
Celebrating
10 years of support and information 1997 - 2007 NLSSG now in it's 11th year UK
Telephone Helpline 07765 947599
NLSSG
would like to organise a yearly patient information day for women, men, the parents
of children and also those with lichen planus and needs to assess the level of
interest before committing funds to this project. Please email admin@lichensclerosus.org
if you would be prepared to travel to an event either in London or Birmingham
(UK).
NEWSFLASH - New - vulva examination video on Channel 4 TV website. Use this link to view video:
Some of our members have been successfully trying a new, certified organic lubricant called Yes. To discover its benefits for yourself, members of NLSSG can receive a complimentary 25ml bottle, worth £5.50, by emailing val@yesyesyes.org or by phoning 08456 44 88 13. Please give your name, address and state your preference for water or oil-based Yes. (Water-based is a vaginal moisturiser and lubricant which is condom compatible - oil-based is richly lubricating, but not suitable for use with condoms.) Yes is ideal for daily use with vaginal dilators, for assisting lovemaking or for promoting everyday comfort. Check out their website at www.yesyesyes.org.
MARCH
IS VULVAL HEALTH AWARENESS MONTH! Visit
the VHAC website to learn more about vulval
health awareness.
Lichen
Sclerosus and Pregnancy
- If you have been pregnant since being diagnosed with LS, then please consider
taking our NEW SURVEY. NLSSG has been asked by a team of UK Dermatologists to
host a questionnaire to be used for vital research into this aspect of lichen
sclerosus.
Click here to take our Online Survey
View
my Message Board Free
Forums by Bravenet.com - Join
the message board and interact with others who have lichen sclerosus. Please be
aware that when you fill in the message form to post to the message board, if
you include your email details, they will show up on the message board. If you
are concerned about your confidentiality, you may use a name other than your own
and do not enter your email address. Please avoid the temptation to ask for and
to give actual medical advice on the board. Your medical practitioner is the only
person who can give you advice about what treatment to use. NLSSG has made this
board available for patients to share and to feel less isolated. The board must
not be used as a place to self diagnose or to give and receive actual advice about
treatment. NLSSG will not be responsible for any harm or consequences of using
information on the board. You must use the board at your own risk.
UK Patients
please read about 'Choose and Book'
New UK NHS system for referral by your GP to a consultant.
The new system is called 'Choose and Book' details can be found at http://www.dh.gov.uk/Home/fs/en
when you reach this page, use the search window and type in 'choose and book'
this will take you to the information.
VULVAL
PAIN For
all issues regarding vulval pain use this link to the Vulval
Pain Society website. The site contains a wealth of information and gives
details of workshops and events as well as links to other helpful sites.
Fabia Brackenbury Founder of NLSSG and the Vulval Health Awareness Campaign
Friendship
is born at that moment when one person says to another, 'What! You too? I
thought I was the only one'. C.S. Lewis
We
must accept finite disappointment, but we must never lose infinite hope".
Rev. Martin Luther King, Jr.
Site
Author: Fabia Brackenbury (Honorary member BSSVD) Information for this site
is based on published medical articles and input from the British Society for
the Study of Vulval Disease (BSSVD)
Fabia Brackenbury Founder of NLSSG and the Vulval Health Awareness Campaign