National Lichen Sclerosus Support Group

NATIONAL LICHEN SCLEROSUS SUPPORT GROUP
The first group in the world to be established for lichen sclerosus
A UK based voluntary group with an international membership and reputation
Celebrating 10 years of support and information 1997 - 2007 NLSSG now in it's 11th year
UK Telephone Helpline 07765 947599

It is hoped to include the above subjects on the new site.

Welcome to the lichen sclerosus community here at NLSSG. This site will soon be undergoing re-construction. It is hoped that the information on the new site will be extended. At the moment some of the links here are under review/construction. Please read through the site first, then if you still have queries or concerns that this site does not answer, please feel free to contact the Founder, Fabia, by using the link on the contact NLSSG page. Read more about Fabia and NLSSG here.

Lichen Sclerosus and Pregnancy - If you have been pregnant since being diagnosed with LS, then please consider taking our NEW SURVEY. NLSSG has been asked by a team of UK Dermatologists to host a questionnaire to be used for vital research into this aspect of lichen sclerosus. Click here to take our Online Survey

Lubrication?
Some of our members have been successfully trying a new, certified organic lubricant called Yes. To discover its benefits for yourself, members of NLSSG can receive a complimentary 25ml bottle, worth £5.50, by emailing val@yesyesyes.org or by phoning 08456 44 88 13. Please give your name, address and state your preference for water or oil-based Yes. (Water-based is a vaginal moisturiser and lubricant which is condom compatible - oil-based is richly lubricating, but not suitable for use with condoms.) Yes is ideal for daily use with vaginal dilators, for assisting lovemaking or for promoting everyday comfort. Check out their website at www.yesyesyes.org.

View my Message Board
Free Forums by Bravenet.com - Join the message board and interact with others who have lichen sclerosus. Please be aware that when you fill in the message form to post to the message board, if you include your email details, they will show up on the message board. If you are concerned about your confidentiality, you may use a name other than your own and do not enter your email address. NLSSG may not be able to remove your messages once you have sent them. Please avoid the temptation to ask for and to give actual medical advice on the board. Your medical practitioner is the only person who can give you advice about what treatment to use. NLSSG has made this board available for patients to share and to feel less isolated. The board must not be used as a place to self diagnose or to give and receive actual advice about treatment. NLSSG will not be responsible for any harm or consequences of using information on the board. You must use the board at your own risk.

New - Chat Room
Enter my Chat Room
Free Chat Rooms by Bravenet.com
Please treat others in the chat room with respect. Remember you use this facility at your own risk the same as for the message board above.

Friendship is born at that moment when one person says to another,
'What! You too? I thought I was the only one'.
C.S. Lewis

We must accept finite disappointment,
but we must never lose infinite hope".
Rev. Martin Luther King, Jr.

Site Author: Fabia Brackenbury
Information for this site is based on published medical articles and input from the British Society for the Study of Vulval Disease (BSSVD)