There are a number of online support groups for women. Mainly Facebook. If you are a Facebook member you can search for these easily. If you are unable to use Facebook or online support forums, you can book a Zoom video call, and email chat, or a phone call with ALS by using the Contact form. If you are a friend or relative of someone who has LS and cannot use the internet, you can email on their behalf.
Facebook pages for Lichen Sclerosus supported by ALSVH
Meeting communities in the UK
The Bristol (UK) face to face meeting group has a new meeting on 15th February 2020. Please follow the link for further information.
The London Vulval Pain Support Group also welcomes those diagnosed with lichen sclerosus. Face to face meetings in London.
Meeting communities in the USA
Arranges face to face meetings. Sharing local information. Welcomes those who can travel to Cincinnati.
Try a Google search to find other online groups.